Author Topic: My Theory  (Read 33119 times)

lostmojo

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Re: My Theory
« Reply #30 on: May 16, 2013, 02:12:52 AM »
Anyway, I'm a woman who suffers from the female form of this. Is it alright if I post on this forum? I have yet to see a similar group of females talking about this on the internet. I've actually been lurking here for a while, but have finally got the courage to post.  :P

Welcome Kstat, good for you for posting.

There was a female on this forum at the very beginning of it's life (a link to her posts is below) and she also posted on hisandherhealth.com:
http://ejaculatoryanhedonia.com/index.php?action=profile;u=12;sa=showPosts

gdop

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Re: My Theory
« Reply #31 on: May 16, 2013, 10:20:16 AM »
Anyway, I'm a woman who suffers from the female form of this. Is it alright if I post on this forum?
Hi Kstat!
Don't mean to be rude, but this forum is about ejaculatory anhedonia, a male condition (i know there is some discussion about female eyaculation, but I think it is not related to male ejaculation). If we are talking about female anorgasmia, it's a common and very studied sexual dysfunction. Dont want to spoil this interesting thread, if you want some explanation it is better to open your own thread.

Thanks,
Gdp

Chris

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Re: My Theory
« Reply #32 on: May 16, 2013, 02:30:17 PM »
I have completed by discussions with the aforementioned surgeon and I'm afraid I hit a wall with him.  He seems perplexed by my discussion of the entire syndrome and even intimated that it may be due to child abuse (which does not apply to me).  I do object to the term 'anhedonia' as I stated earlier as it implies a psychological issue which I am confident it is not.  I think anesthesia may be more descriptive, albeit an incomplete description.  Getting the medical profession to address this problem is not going to be easy, as my early efforts have already attested.

I'm a point where I need to test this theory some more, and in order to do that I have a few ideas.  My time in general is limited, so I apologize if things move at a snail's pace, but I intend to continue researching this problem till I get a satisfactory explanation.  For starters I plan to develop a fairly extensive questionnaire which I will post on the appropriate forum because I think describing this condition is critical to solving its mechanism or pathogenesis.  And I feel like it has not been described in enough detail at this point.  I repeat again that the post SSRI cases likely follow a different course, so while they may shed some insight into paths of causality, I do think this is a separate group. 

One intriguing experiment which I look forward to trying is neuro-electrical stimulation.  (I still have not purchased a TENS unit because I am not really inclined to expose this whole affair to my wife, YET).   But when I get my hands on one, I do believe it may yield some really interesting results.  To any or all of you that have a TENS unit, you may message me and I will discuss what I propose to try. 

Whether I want to go down the whole path of MRI nerve imaging or nerve conduction studies I am not sure.  It will be a financial investment (since insurance won't cover it).  I did locate a qualified radiologist in NYC who does pudendal MRI, but as I said, I am not quite ready to dive into this area at this time. 

On the general matters of my theory, I still remain somewhat perplexed why pain would not be a more common finding in men with EA.  I'm also intrigued as to how many men develop it very early in their sexual life (for me, around 13-14).  This has to have some significance I would think.   I have also started to think about circumcision and how this may contribute, but not directly cause the syndrome.  As far as the woman on the forum, there is no good reason I can think of, a priori, that a woman could not develop this syndrome.  She also has a pudendal nerve like all of us as well as a dorsal nerve of the clitoris (in lieu of penis).  So I think it's possible.

Well, that's it for now...keep the discussion going.


needhelpage31

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Re: My Theory
« Reply #33 on: May 16, 2013, 04:20:22 PM »
Chris, I appreciate that you're with us and posting your thoughts.

I can see how the term 'anesthesia' could be more appropriate if your theory is right.

I'm also sorry to hear that your surgeon couldn't see past what he "knows" to realize that you may be on to something. And it may be more common than anyone suspects.

Did you read the posts from a year or so ago about the urologist in Michigan who was looking for people to try a spinal implant in? It seems like it could be a way to test your idea. The trouble is that it would cost $11,000 or so to try it out.

NoFun

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Re: My Theory
« Reply #34 on: May 17, 2013, 02:30:10 AM »
Hi everyone, I'm new to this forum. I didn't see an introduce yourself area so I thought I'd post here. Anyway, I'm a woman who suffers from the female form of this. Is it alright if I post on this forum?
More than alright with me. I saw someone else object, but you can't please all the people all the time.

I look forward to your post.

NoFun

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Re: My Theory
« Reply #35 on: May 17, 2013, 02:54:16 AM »
I don't think the contractions at the moment of ejaculation could supply significant extra compression in general, and in particular for me, because the force of my contractions are particularly weak. But even for most people, isn't nerve entrapment cause more by constricted space around bones and tendons that would be more affected by position than muscle tension.

On the flip side, that would be something to test. Maybe you could find an acute position that momentarily released the compression. You should be able to move the bones around to release the compression. Also, relaxing and preventing muscles tension should.

But if it is some kind of compression, it has probably weakened the nerve and it's firing, given the decades of the problem. Just not a healthy nerve at this point.

Your case sounds a little similar to mine. I've had maybe two orgasms, and am now approaching 50. With the one orgasm I have a clearer memory of, there was something of a sharp pain in the head of my within maybe 20 seconds of my orgasm.

You mentioned an interest in a poll. I tried a number here, but got little response. One of the forum sections is dedicated to polls. The software isn't great, however, and that may be limiting response.

I tend to think it's a neurotransmitter thing, or a DHT issue. My DHT was at the very bottom of the reference range, last I tested.

lostmojo

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Re: My Theory
« Reply #36 on: May 18, 2013, 12:59:58 AM »
I tend to think it's a neurotransmitter thing, or a DHT issue. My DHT was at the very bottom of the reference range, last I tested.

I had many orgasms before the onset of EA, both the buildup and the actual orgasm always felt fantastic. Then one day it just didn't feel as good but I thought little of it. Within a year or so I had little feeling left at the point of orgasm and significantly less intense feeling during the buildup. Over the years it has continued to diminish for both and I've never felt any improvement temporary or otherwise, that is it has been a 100% consistent decline.

I know neurotransmitters are involved in the orgasm itself but could they also influence the buildup as well? If a neurotransmitter deficiency is a factor in my case then it sure seems like it is impossible to refill the bucket despite different eating patterns and trying every natural supplement I could think of, even low dose naltrexone had zero effect.

alias

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Re: My Theory
« Reply #37 on: May 18, 2013, 01:49:35 PM »
I definitely agree it has something to do with the pudendal nerve at least for some of us.  I had a MRI neurography study done (not cheap by the way) that showed irritation of the pudendal nerve just distal to the level of the ischial spine.  The findings were consistent with the presence of a subtype of pudendal nerve entrapment syndrome.  The pain from the nerve irritation has been controlled with muscle relaxants and medication aimed at reducing nerve pain.   

I have talked to Dr. Kenneth Peters in Michigan about his pioneering work with an interstim device.   He is able to place leads near the pudendal nerve versus the typical sacral nerves to control pelvic pain.   There is a testing period to see if it works prior to implanting the device.    Whether or not it will help with the situation that concerns us on this site is a good question.  His office is able to check on insurance coverage for the testing period.  I'm letting my checkbook cool off after the MRI bill.

lostmojo

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Re: My Theory
« Reply #38 on: May 18, 2013, 07:16:07 PM »
I definitely agree it has something to do with the pudendal nerve at least for some of us.  I had a MRI neurography study done (not cheap by the way) that showed irritation of the pudendal nerve just distal to the level of the ischial spine.  The findings were consistent with the presence of a subtype of pudendal nerve entrapment syndrome.  The pain from the nerve irritation has been controlled with muscle relaxants and medication aimed at reducing nerve pain.

Hi alias, sorry you're here if you know what I mean.

Does this mean you have both pelvic pain and lack of sexual sensation? And little or no sensation at the point of orgasm?

If yes I believe you're the first person on this forum (that I know of) that has both pain and diminished sexual function. Bad as that is your presence and potential treatment could be very enlightening for a number of us, that is the people with EA that is not linked to SSRI or any other medications.

Radium

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Re: My Theory
« Reply #39 on: May 18, 2013, 10:28:52 PM »
Chris, I think this is a good theory. I personally do not feel any pleasure at all, none during build up nor orgasm. This seems to be different than what others on this board experience where there is some pleasure during build up but none during orgasm.

Your theory would make sense in my case. When I was in my teens for some reason I thought that if I clenched my PC muscles during masturbation it would enhance the pleasure. I think I did that frequently enough that now whenever my penis is touched I involuntarily clench my PC muscles. It is a completely involuntary reaction and I do not know how to stop it. This could explain why I have absolutely no pleasure. As soon as my penis is touched the PC muscles contract and block off any pleasure sensations.

It seems from the stories on this board that many people lost their feeling in their later teens, maybe because of masturbation practices such as clenching? For me it was a gradual thing that I didn't really notice. Just one day I noticed that my orgasm wasn't nearly as good as other people describe it.

I wonder if there is some way to prevent my muscle clenching? If there was then I could see if my feeling would return.


IwantMyMojoBack

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Re: My Theory
« Reply #40 on: May 19, 2013, 05:51:06 PM »
Chris,

I've been very quiet on here for a very long time. I was one of the original participants that migrated from the hisandherhealth forum a few years back.
A long time ago, we participated with some simple self sensitivity tests, and despite a unanimous result (6 out of 6) ie the few of us that did the test were all clearly, way off where we should be in terms of penile sensitivity, but no matter how much I tried I couldn't progress the subject.
To carry out the tests, I had found a website that detailed a map of the human body in terms of sensitivity on a scale of 1 to 10, and using a pointed object, we touched the various parts of our anatomy, and compared the results with the aforementioned map. I found that my penis was literally the least sensitive part of my body.
Interestingly, the head of my penis is almost completely numb on one side, with almost all feeling restricted to the frenulum area.
I can retrieve some of this information, and post it on here, if you think it may be of help in finding a solution for all of us?

alias

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Re: My Theory
« Reply #41 on: May 19, 2013, 08:48:17 PM »
Yes, I have pelvic pain and loss of sensation.  The fact that I have received a recent diagnosis of pudendal neuralgia gives this theory some merit.


Chris

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Re: My Theory
« Reply #42 on: May 20, 2013, 01:36:09 PM »
I do think the muscle contractions are not inconsequential.  The area along the pubic symphysis is essentially a canal shaped structure which holds the blood vessels and nerves in direct opposition to bone, with tendinous sheaths around it and finally muscles.  When these muscles contract pressure in the compartment is likely to increase and the nerves may even shift.  I'm not a great proponent of the idea that self learned, voluntary contractions of these muscles somehow do in the nerve.  I think there has to be a "susceptibility factor" vis a vis the anatomy to start off with, probably something we're born with.

Another idea I have been ruminating has to do with the tension on the dorsal nerve as nerve compressions can be due more to tension than entrapment.  The dorsal nerve of the penis necessarily has to lengthen as the penis becomes erect and it has evolved to be kind of like an accordion, capable of stretching and unstretching.  Could some men be more prone to extra tension on this nerve during erection? Who might these men be?  It would be those whose penis length during erection/penis length in flaccid state is significantly above average, perhaps by a factor of 2-3 X.  This is consistent with the injury being early in sexual life, i.e. the erection and perhaps orgasm actually is a "stress test" on the nerve.  The more you have, the more stretch, the more stretch, eventually a breaking point is reached, at which point there may be pain and then EA sets in.  Perhaps some circumcisions that are too "generous" could be another susceptibility factor.  Those of us who lose more foreskin may be more prone to this. 

Just another angle.  I'm certain its nerve injury.  I'm just considering other nerve locations and mechanisms.  Stretch may be an important factor.


lostmojo

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Re: My Theory
« Reply #43 on: May 22, 2013, 06:05:54 AM »
Perhaps some circumcisions that are too "generous" could be another susceptibility factor.  Those of us who lose more foreskin may be more prone to this.

My very first theory about my lack of sensation was that it may have been due to being circumcised. I set about trying to stretch my existing skin as set out on various "restoration" sites. This did not go well as my skin would start to hurt soon after applying tension. Although no-one claims it will be a quick process my own progress was much much slower than even the most pessimistic estimates. Eventually I gave up having achieved only a minimal amount of "slack", not even a hint of what you could call a foreskin.

Starting this process made me more aware of my skin being very very tight during an erection, this is in line with your theory. Even now with that little bit of extra skin it is still very tight.

fireman

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Re: My Theory
« Reply #44 on: June 04, 2013, 01:09:10 PM »
blood test came back as normal testosterone. am now very down about the whole situation. getting nowhere. urologist basically said nothing to be done, but my gp is trying to get me referred to a specialist at UCL . also, had another proctalgia attack last night. the older i get, the more i feel im missing out. acupuncture hasnt worked - i'll try most things - nor physio, hypno, etc etc etc. there MUST be someone out there who has solved this