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I'm Cured! / Only have enjoyable Os under extreme pressure
« Last post by Jabele on August 14, 2017, 05:13:07 PM »
I need to first preface this by saying that I'm a female, but my symptoms are very similar to all of yours and really think this condition has little to do with gender

Background on me. 33 y/o, was dxed with addisons disease at age 13.  I had a moderate sex drive when I was young but never did anything with it other than self stim. The way I learned to self stim wasn't traditional but instead was a rubbing/pressure type O, always fully clothed. Never wanted to "touch" myself and that has continued to this age.

I had slightly stronger Os than I can achieve now when i was younger but they were always pretty a 1 or 2 out of 10 which I assumed was normal. Now any O i experience is less than 1 out of 10 on the pleasuee scale UNLESS I'm in a super stressful situation. The most pleasant O I've experienced was in the middle of my GREs when I thought I was going to run out of time...i got super horny and was able to get myself off by rubbing my legs together (one of my techniques) except that time it actually felt really good. This also happened during a couple exams back in Middle and High School. Unfortunately, I've not experienced anything like it since the GRE test and that was like 15 years ago. About a year ago I was in a stressful work thing and i achieved a better than average (for me) O...maybe a 2 or 3 out of 10

I should also note that I have lyme that I've prob had for 10 years but this sex stuff has always been an issue tho i think it's even worse lately.

I don't know what to make of the fact that I know my body is able to orgasm but only in these very unique situations and eveything else SUCKS. Also, when I use a vibrator I get a total 0 out of 10 orgasm...i feel the contractions and like it's happening  but not even a tickle. My drive to have sex is like non existent which is funny because I tried to delude myself that my sex issues would resolve when I found "the one."

Do these pleasurable blips have something to do with adrenaline?

 My endos have always said my addisons shouldn't cause sex dysfunction and per my research there are no other cases I've found of folks with this issue, which is odd because the adrenals make lots of sex hprmones. Supplementing with dhea, testosterone, progesterone, etc does nothing to help.

I always wondered if the adrenaline idea was related to my health issue but can't find any connection online

If only the testing situstion was replicable.!  welcome your thoughts. I feel like maybe there is something to this.
General Discussion / Re: Only orgasm was first time
« Last post by gdop on August 14, 2017, 07:30:20 AM »
Hi and welcome Nathaniel, more or less same story, some orgasms when I started masturbating, I don't know exactly how much but more or less like you.
Now I'm in my forties, never experienced it again.

I think I had one a couple of years ago, but I'm not shure what it was, as it was a completely isolated experience.
General Discussion / Only orgasm was first time
« Last post by Nathaniel on August 13, 2017, 06:15:03 AM »
The only orgasm i've ever had was induced by the first time i had ever masturbated, and possibly 1-2 times after that. I have seen several people mention a similiar story and wondered how common this was? please respond if you have similiar symptoms.
Try Adderall if you can get it from doctor.  I went to the doctor and was straight up.  I happened to get it from someone I know and tried it and I noticed the sensation was really good.  So I told the doctor this and I have no addiction tendencys or anything so a low dose of Adderall he put me on.  He first made me try Wellbutrin and that didn't work.  I had some success with Ritalin but the Adderall is the best.  It increases dopamine which is pleasure chemical.  Cant hurt to try and ask the doctor.  Just be upfront even say your problem with no orgasm.   If you are a responsible person and don't abuse things like this it will be good for you.  Worked for me.  I don't always have an amazing orgasm but the pleasure is always really good building up.  Most of the time now I have a fairly enjoyable orgasm. Build up to ejaculating is always very good. 
I'm Cured! / Try this....
« Last post by hovi25 on August 03, 2017, 04:32:13 PM »
.... Delete post
please get back to us with an update. the fact that you stopped taking it and are back to zero rating, is interesting.
my sacrocranial therapist said about the healthy gut thing being critical to the health of nerve endings.
oh and congrats on the wedding btw !.
I'm Cured! / craniosacral therapy
« Last post by fireman on August 01, 2017, 08:00:07 AM »
hi all.
having tried lots ( and LOTS) of possible solutions to this godforsaken problem, and ive got exactly nowhere. only once have I had a benefit from all these things and that was after a chiro realigned my pelvis. he never managed to repeat it so I gave up. These include hypnotherapy, counselling, anxiety drugs, acupuncture, reiki, chiropractor, anal internal massage, pelvic floor relaxation , psychotherapy, vitamins, cabergoline ( don't go there ) over the course of 20 plus years. my continued research led me to Tarlov cysts as a tenuous link. apparently lots of people have these cysts which are problems with the nerve endings on the spinal column lower end. most people are asymptomatic. they have been linked with physical trauma to the back/spine ( I fell on my coccyx when I was 18 taking away my sight and hearing for a few minutes. I also had lots of damage to my back muscles through work and sport ). there is little one can do about these cysts but the list of possibles includes craniosacral therapy which is non-invasive, and harmless. a good friend of mine is a respected practitioner in the field so I am going to try a course of sessions with her. yes I admit desperate!
comments anyone - good or bad!!
Hey guys, I never did start using these fibers regularly, in fact I stopped them all together. This is because I had my wedding coming up, stuff to sort out, and these fibers in large doses gave me diarrhea. Also I totally forgot about them and all the research in this thread.

Anyway I'm going to try and take these regularly before bed again.

I saw a new thread in the I'm Cured section, about how antibiotics really helped increase orgasm for some people. This may be related to these prebiotic fibers, because they are meant to help increase good bacteria, which helps reduce bad bacteria.

Currently my orgasms are 0 again, so we'll see.

But I'll try and take:

Inulin (Fructo-Oligosaccharide (FOS))
VitaFiber (Isomalto-oligosaccharide (IMO))

Before bed everyday.
Contributing Factors - Physical / Re: Cabergoline (dostinex) seems to be helping
« Last post by fireman on July 27, 2017, 07:10:52 AM »
I saw that a few had mentioned cabergoline as a possible help. so I had some prescribed privately but stopped taking it after about 2 or 3 weeks. I was getting severe chest pains and as I have had a heart attack 11 years ago it scared the crap out of me. also, my routine annual blood tests taken shortly after, threw up some massive increases in some numbers connected with liver function.  my gp said the numbers he was seeing can be associated with hepatitis, liver failure etc .( these numbers have now returned to normal.) he was not a happy man when I told him about the cabergoline - which he had not prescribed - , explaining to me that ALL medicines get metabolised through the liver. my freak results could have been a coincidence, but I'm just saying guys, if you are going to stay on  the cabergoline I would think about getting liver function blood tests done.
General Discussion / Re: hereditary or not
« Last post by needhelpage31 on July 24, 2017, 06:55:35 AM »
I talked to my father about this, 12 or 13 years ago. He said he's never had the problem.

Like anything else, there's probably some way it could be hereditary. But my guess is that we each have something that's triggered it for us.
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