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91
I think continue on and if you still notice a discernible benefit after 6 months you are onto something.
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General Discussion / Re: Personal breakthrough (shocked)
« Last post by RocketTN3 on May 28, 2017, 09:03:40 AM »
Hey. I am a female but I too recently was dxed with Lyme and likely have had for at least 10 years

I also have low sex drive  (which has improved slightly lately) and orgasmic abhedonia, esp with vibrators. I can feel like a 1 or 2 out of 10 when I hump or rub against the floor which is how ive always masterbated but feel a 0 with vibrator tho I get more contractions and build up, I feel nothing. 

I never really had good orgasms in my life...maybe 2 top.  I also didn't attribute to Lyme but now I wonder if it's related. I also had adrenal issues  (since 13).

Things have improbed slightly but I know I'm not 100%. What is it about Lyme that causes this. Is it immune or cell related? I don't quite get it.

How is your treatment and what effect has it had on your sex life and orgasms?

Hi Jabele, sorry I have only just seen this post. In honesty I have not been frequenting the forums much lately.

When I got the lyme diagnosis I was shocked but as time has gone on I've become more doubtful of the diagnosis. The trouble is that mainstream doctors don't acknowledge the disease. The private labs may do, but of course there are those that stand to gain from offering lyme treatments and tests. The tests available at a price are extremely sensitive, it may be they are picking up a disease or infection I once had which has since gone. Who do you believe?

I began purchasing tinctures online but the cost quickly spiralled. The forums out there for lyme are great, but on the downside there are many people who are self-diagnosed and self-treating. It's difficult without real face to face support, and that is extremely costly. There is the question of who to trust.

As you can probably gather from this I lost my impetus to continue on down this road, and stopped paying much attention to the private lab diagnose but did continue on with the nutritionist protocol, which mainly involved eliminating any issues within the gut and then (which I'm doing now) taking various vitamins and minerals (supplements and whole food sources) to boost the immune system. My energy has increased and overall wellbeing, but in honesty my EA is the same it ever was. This is very depressing to me of course.

Sorry to hear about your troubles. I really wish that I could say for certain what/what isn't a contributing factor. The truth is I don't know. Even on the lyme support forums, there are very few that report lichen sclerosus (an inflammatory skin disorder I have on my foreskin which causes tightness) and even fewer report orgasmic numbness. So I have to be careful not to draw parallels where in fact there are none.

Of course fatigue, tiredness, anxiety, depression, those sorts of things, overlap with many chronic and not so chronic diseases. It's likely anyone suffering from disease is going to have energy issues. So, really, what can I draw from this? I would rather avoid institutionalising myself with the lyme diagnosis, there is just not enough evidence.

Likewise, on here, I appear to be the only one with lichen sclerosus, so perhaps I need to face facts and deal with the fact my problems are unique to me, and that no matter how hard I try to find the perfect explanation on the web, my problems are unique and maybe cannot be explained or cured with some perfect plan. The harm is in continually trying to find the perfect answer, because it's so easy on the web to find evidence for anything, even if it's false or inaccurate.

All of my recent tests have come back normal. The MRI of the brain was normal. Thyroid was normal. I still have the low FSH and low SHBG readings, a recent spermatology test appeared to be normal. All I really have left to do is exhaust the physiotherapy route. Although I've seen a physiotherapist, they did not specialise in the pelvic floor, so that is something to try. I've also yet to see a chiropractor. For the lichen sclerosus I see a dermatologist and continue to try different natural treatments for it. So far the only thing that helps is a steroid ointment. It's difficult so say whether the lichen sclerosus is related to my EA. I think most likely is that I am unlucky enough to suffer from both. I do not feel able to get into a relationship, and it's stopping me. I would like this to change in the future but it's unlikely unless the lichen sclerosus goes away.
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I'm Cured! / Re: First O in little over a year!
« Last post by RocketTN3 on May 28, 2017, 08:27:32 AM »
Carpet how are you doing now? Enough time has passed surely for you to give your verdict on this?
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I'm Cured! / Re: Working out may cause lack of libido and/or orgasm
« Last post by RocketTN3 on May 28, 2017, 08:18:22 AM »
My symptoms became chronic when I was working out yes, and I often notice my penis shrinks up when I am exercising vigorously. Before EA it didn't do this. A chiropractor may be of use. I've seen an osteopath and a physiotherapist and didn't really achieve much with either. Of course I'm very eagar for anything I try to work, and so get excited and very very depressed when things turn out not to work. Sometimes I see improvement for it not to last. So many years on I can't honestly say I'm much further on from when I started.
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I'm Cured! / Re: First O in little over a year!
« Last post by fireman on May 26, 2017, 08:04:12 AM »
update on the pelvis floor tension treatment
I found a specialist eventually who understood what I was saying about the lack of pleasure. he was very helpful and listened to what I had to say without making any pre judgements. he gave me a series of examinations and exercises to do at home. also recommended a glass ''wand'' to try to relax any trigger points that could be present internally ( in the anus). I tried it for a while but didn't really see any noticeable success. I use the wand a couple of times a week but cant really see it has helped. if anybody has had better results than this please post
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I'm Cured! / Re: anybody tried cabergoline?
« Last post by fireman on May 25, 2017, 06:43:01 AM »
update on the cabergoline
an unexpected issue has arisen a few months down the line. after my annual blood tests which were taken about the time of my trying the cabegoline ( carried out ever since my heart attack 11 years ago ) my gp noticed that my liver function results were off the chart. asked me if I had had a tattoo recently - no - and told me that results such as these can be a marker for hepatitis. or liver disease....or had I taken any unusual meds as all things get metabolised in the liver. he wasn't happy when I told him about the cabergoline. the results COULD have just been a freak showing, but they have dropped right back to normal now so just a word of warning really for anybody out there thinking of trying a new potent drug. while we all want desperately to find the answer, consider any repercussions very carefully.
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I'm Cured! / Re: Cured after 20 years of little or no pleassure from ejaculation
« Last post by fireman on May 25, 2017, 06:33:48 AM »
Have you tried ashwagandha yet Jonny? I'm interested to know how it's gone if you have...

Just restarted gastrodin today, as I stopped the psych med it was interacting with. Gonna see how that goes for 2-3 months. I intend to take ashwagandha at some point for its brain and other benefits. Will let y'all know if either resolve the issue.
Hi Jonny
I have just started ashwaganda too. only a week in, so no effects yet. my symptoms are like yours. no pleasure other than a feeling in the penis, and not particularly enjoyable. no sensation in the pelvis, prostate, or anything like a body orgasm. sometimes really gets me down. I feel as if one of lifes most human and unique pleasures has been stolen from me
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Hey muffslayer! I noticed you mentioned night nurse, this contains DXM. It's used as a cough suppressant I think.
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I'm Cured! / Re: Fully cured with LSD
« Last post by Some Day Soon on May 16, 2017, 01:21:13 AM »
NoFun,

I have tried LSD twice for other purposes and also to see if it helped.

While I was high, it allowed me to move and manipulate my tight pelvic floor muscles much easier. I was much aware of each of the muscles. Other than that it didn't help (I didn't try masturbating). I didn't take as much as OP though. It might be worth asking him if he has had normal doses before that did not yield results.
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I'm Cured! / Re: Cured after 20 years of little or no pleassure from ejaculation
« Last post by Jonny on May 15, 2017, 01:59:19 PM »
Have you tried ashwagandha yet Jonny? I'm interested to know how it's gone if you have...

Just restarted gastrodin today, as I stopped the psych med it was interacting with. Gonna see how that goes for 2-3 months. I intend to take ashwagandha at some point for its brain and other benefits. Will let y'all know if either resolve the issue.
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